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HHS
National Institutes of Health
NIH
National Center for Advancing Translational Sciences
NCATS
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Home
Get Started
Learn About Registries
Understand Data Principles
Learn About Ethical and Legal Aspects
Know Your Disease Landscape
Set Up Your Registry
Create Your Registry Plan
Determine Who Should Join
Develop the Right Questions to Ask
Decide How to Collect & Store Your Data
Manage Your Registry
Recruit & Engage Participants
Review & Clean Your Data
Promote Your Registry
Review & Evolve Your Registry
Glossary
About RaDaR
Sitemap
About RaDaR
Disclaimer
Glossary
Glossary
Home
Sitemap
Set Up Your
Registry
Create Your Registry Plan
Overview
Set Goals
Consider Constraints
Plan for Roadblocks
Track Progress
Develop a Governance Plan
Determine Who Should Join
Overview
Set Language Requirements
Determine Geography
Establish
Diagnostic Criteria
Develop the Right Questions to Ask
Overview
Collect
Patient
Information
Decide on Demographic Questions
Create Questions About Diagnosis
Document Permissions to Use
Data
Decide How to Collect & Store Your Data
Overview
Pick a Data Collection Tool
Know Features of the Data Collection Tool
Create Your Data Collection Tool
Test Your Data Collection Tool
Manage Your Registry
Recruit & Engage Participants
Overview
Develop a Recruitment Strategy
Create Recruitment Materials
Develop an Engagement Plan
Create Communication Materials
Review & Clean Your Data
Overview
Perform
Data Quality
Control
Clean Data Collected
Review Data Protection Plan
Analyze Data Collected
Promote Your Registry
Overview
Find Researchers
Promote Your Registry
Manage and Share Data
Review & Evolve Your Registry
Overview
Revisit Registry Goals
Reassess User Needs
Plan for Next Steps
Get Started
Learn About Registries
Overview
Learn What Is a Registry
Know What Information to Collect
Check Whether a Registry Exists
Understand Data Principles
Overview
Understand What is Data
Be a Good Data Steward
Know About Data Privacy & Security
Learn About
Data Ownership
Learn About Ethical and Legal Aspects
Overview
Protect Human Research Participants
Know U.S. Laws & Regulations
Be Informed of International Laws
Know Your Disease Landscape
Overview
Learn What is Known About Your Disease
Determine What Research is Being Done
Identify Registry Stakeholders
