Recruit & Engage Participants

Overview

Develop a strategy for finding participants and a plan outlining how you’ll communicate with them after they join. Establish a high level of trust with participants to ensure their continued involvement in the registry.

Resources

Develop a Recruitment Strategy

Section III: Operating Registries in Registries for Evaluating Patient Outcomes: A User’s Guide, [internet]. 4th Edition Agency for Healthcare Research Quality (AHRQ) (link)

World Federation of Hemophilia Guide to Developing a National Patient Registry World Federation of Hemophilia (WFH) (link)

Section II: Legal and Ethical Considerations for Registries in Registries for Evaluating Patient Outcomes: A User’s Guide, [internet]. 4th Edition Agency for Healthcare Research Quality (AHRQ) (link)

Create Recruitment Materials

RaDaR Tool: Sample Recruitment & Outreach Material RaDaR

Frequently Asked Questions - Registries NIH Clinical Research Trials and You (link)