A registry is simply a database that collects and stores specified types of information that are usually related in some way. In the context of the therapy development pathway, a registry usually collects information about patients who have a specific disease or condition and may be referred to as a patient registry. However, other registries may seek participants who are healthy and are interested in volunteering for phase 1 clinical trials. Registries may contain information that is reported by patients, by clinicians or researchers, or a combination. The goals of registries vary as does the information being collected.

Registry types