Recruit & Engage Participants

Resources

Section III: Operating Registries in Registries for Evaluating Patient Outcomes: A User’s Guide, [internet]. 4th Edition Agency for Healthcare Research Quality (AHRQ) (link)

World Federation of Hemophilia Guide to Developing a National Patient Registry World Federation of Hemophilia (WFH) (link)

Section II: Legal and Ethical Considerations for Registries in Registries for Evaluating Patient Outcomes: A User’s Guide, [internet]. 4th Edition Agency for Healthcare Research Quality (AHRQ) (link)

RaDaR Tool: Sample_Recruitment_Outreach_Material (.pdf, 109 KB) RaDaR

Frequently Asked Questions - Registries NIH Clinical Research Trials and You (link)