Recruit & Engage Participants
Develop a Recruitment Strategy
When your registry ready to go, locate participants and encourage them to join. Determine how to find participants that meet your registry criteria and develop a strategy to recruit them.
Your recruitment strategy could include the following components:
Description: What is your registry?
- What are your registry’s goals and purpose?
- Why should participants join (what value does it provide to them?)
- How will the participants’ information be collected and stored?
- Who will have access to the participants’ information?
- How will you monitor and evaluate the success of your registry?
Timeline: When will key activities occur?
- When will recruitment outreach materials be ready?
- When will you launch recruitment efforts?
- When will your registry be ready for recruiting?
- When will participants be contacted by researchers?
- How will your activities change over time (e.g., will initial recruitment differ from ongoing recruitment)?
Methods for Finding Participants: How will you locate participants?
- Where do participants get information and medical care?
- On what platforms are participants communicating with each other?
- How/where are new participants diagnosed?
- Are there key influencers who can help you reach more participants?
- Are there other ways to extend your reach?
Strategy for Recruiting Participants: What channels will you use to encourage participants to join your registry?
- Create social media accounts for your registry.
- Post information about your registry in strategic online locations:
- Websites, social media platforms, blogs, and chat groups
- Nonprofit organizations’ websites
- Other existing patient advocacy groups’ websites
- Connect directly with specialists or clinical centers that are diagnosing and treating patients.
- Request to be included in registry databases:
Visit the Resources section of this step to learn about additional relevant resources.
Use multiple approaches to reach as many participants as possible.