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  • Home
  • Get Started
    • Learn About Registries
    • Understand Data Principles
    • Learn About Ethical and Legal Aspects
    • Know Your Disease Landscape
  • Set Up Your Registry
    • Create Your Registry Plan
    • Determine Who Should Join
    • Develop the Right Questions to Ask
    • Decide How to Collect & Store Your Data
  • Manage Your Registry
    • Recruit & Engage Participants
    • Review & Clean Your Data
    • Promote Your Registry
    • Review & Evolve Your Registry
  • Glossary
  • About RaDaR

Get Started

Starting a registry can seem like a huge undertaking, but you don’t have to tackle all the steps at once. This page provides an overview about registries and the major milestones that will help you build a successful registry.

Learn About Registries

Learn About Registries

Understand the purpose of registries, what type of information they collect, and how to check if a registry exists.
Learn More

Understand Data Principles

Understand Data Principles

Understand what data, data privacy and security, and data ownership are. Learn how to be a good data steward.
Learn More

Learn About Ethical and Legal Aspects

Learn About Ethical and Legal Aspects

Understand how to protect human research participants and learn about U.S. and international laws and regulations.
Learn More

Know Your Disease Landscape

Know Your Disease Landscape

Learn what is known about your disease and determine interest in your disease.
Learn More
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Maintained by the National Center for Advancing Translational Sciences (NCATS)