Review & Evolve Your Registry

Resources

Section VI: Evaluating Registries in Registries for Evaluating Patient Outcomes: A User’s Guide, [internet]. 4th Edition Agency for Healthcare Research Quality (AHRQ) (link)

RaDaR_RegistryEvaluationChecklist (.pdf, 155 KB)

RaDaR

Rare Toolkit: Finding Your Fundraising Strategy Global Genes (link)

We Can't Do It Alone: Structure and Governance for Research Collaborations Global Genes (link)

Rare University: Understanding Drug Development Global Genes (link)

Track 3: Show Your Data - What Do You Need To Have Before Approaching Industry Global Genes (link)

Track 2: Funding Sources You May Not Have Heard of - Funding and Collaboration Opportunities with Diverse Federal and State Agencies Global Genes (link)

Rare Webinar: Building the Bridge between Foundations and Industry Global Genes (link)