Review & Evolve Your Registry
Review whether you’ve met your goals, make adjustments based on that assessment, determine whether you’re ready to move into the next phase of your registry and to begin to plan for the move. This iterative evaluation of your progress will help you to improve the effectiveness and relevance of your registry and provide another opportunity to engage with your stakeholders.
Revisit Registry Goals
Section VI: Evaluating Registries in Registries for Evaluating Patient Outcomes: A User’s Guide, [internet]. 4th Edition Agency for Healthcare Research Quality (AHRQ) (link)
Plan for Next Steps
Rare Toolkit: Finding Your Fundraising Strategy Global Genes (link)
Rare University: Understanding Drug Development Global Genes (link)
Track 2: Funding Sources You May Not Have Heard of - Funding and Collaboration Opportunities with Diverse Federal and State Agencies Global Genes (link)