Develop the Right Questions to Ask
Decide on Demographic Questions
Including demographic (e.g., age, sex, race/ethnicity) questions can help you learn more about the participants in your registry. The goals of your registry will determine whether these questions are optional. A best practice is to follow demographic standards, because this will allow you to compare your results with other data sources. Refer to RaDaR Tool: Standard Contact & Demographic Questions to view sample questions selected using data standards established by the Clinical Data Interchange Standards Consortium (CDISC) and United States Core Data for Interoperability (USCDI) .