Review & Clean Your Data

Analyze Data Collected

After the data are collected, you’ll need a procedure for generating reports to help you document, describe, and share the data. Gathering the information in easy-to-digest formats will help you look for patterns, trends, and unexpected results—and enable you to convey these findings to researchers, patient advocacy groups, and other stakeholders.

Examples of basic information to categorize and analyze include total number participants, age distribution, gender, geographic distribution, race, ethnicity, and diagnosis details. Your registry platform may include report options for analyzing data; spreadsheet software programs are also available.