Recruit & Engage Participants
Create Communication Materials
After developing a plan for engaging with participants, draft communication materials to maintain their interest in staying active in the registry.
Examples of communication materials:
- Welcome letter
- Communications about new study opportunities
- Regular newsletters/emails with registry updates
- Semi-annual requests for participants to update their information
Resources
Develop a Recruitment Strategy
Section III: Operating Registries in Registries for Evaluating Patient Outcomes: A User’s Guide, [internet]. 4th Edition
Agency for Healthcare Research Quality (AHRQ) (link)
World Federation of Hemophilia Guide to Developing a National Patient Registry
World Federation of Hemophilia (WFH) (link)
Section II: Legal and Ethical Considerations for Registries in Registries for Evaluating Patient Outcomes: A User’s Guide, [internet]. 4th Edition
Agency for Healthcare Research Quality (AHRQ) (link)
Create Recruitment Materials
Frequently Asked Questions - Registries
NIH Clinical Research Trials and You (link)