Develop the Right Questions to Ask

Create Questions About Diagnosis

Consider what questions on diagnosis you need to include to verify that a participant meets requirements to join your registry. To avoid, “survey fatigue” and overwhelming the person answering the questions, it is important to be mindful about the number of questions included in this section. Be selective in the questions you include.

For example:

1.  How was the patient diagnosed? (Consider providing answer options (e.g., clinical evaluation, laboratory tests, imaging tests, or diagnostic procedures))
   
2.  At what age was the patient diagnosed? 
3. What is the name of the clinician who diagnosed the patient?
4. What is the medical specialty of the clinician who made the diagnosis?
5. What was the diagnosis?
6. Name of medical center, practice, or hospital where patient was diagnosed.

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