Determine Who Should Join
Overview
Establish criteria to help you determine who is eligible to join your registry. Depending on your registry’s goals and constraints, you may want to recruit broadly or have a narrower focus. Your decisions will affect the cost and complexity of your registry, so keep in mind your short- and long-term goals. You may want to refer to RaDaR Tool: Participant Criteria Checklist.
Resources
Set Language Requirements
Chapter 3: Registry Design in Registries for Evaluating Patient Outcomes: A User’s Guide, [internet]. 4th Edition
Agency for Healthcare Research Quality (AHRQ) (link)
Establish Diagnostic Criteria
HIPAA Privacy Rule: Information for Patients
U.S. Department of Health and Human Services: Health Information Privacy (link)