Know Your Disease Landscape

Resources

Learn What is Known About Your Disease

Genetic and Rare Diseases Information Center (GARD) National Center for Advancing Translational Sciences (NCATS) (link)

Orphanet: Registries & Biobanks Orphanet (link)

PubMed National Library of Medicine (NLM) (link)

GeneReviews National Library of Medicine (NLM) (link)

Expanding the Science of Patient Input: Building Smarter Patient Registries FasterCures (link)

Determine What Research is Being Done

ClinicalTrials.gov National Library of Medicine (NLM) (link)

Research Portfolio Online Reporting Tool (RePORTER) National Institutes of Health (NIH) (link)

ResearchMatch About ResearchMatch (link)