Understand Data Principles

Resources

Understand What is Data

The FAIR Guiding Principles for scientific data management and stewardship 2016 Article in Nature: Scientific Data (link)

RaDaR Tool: Data Quality Control Checklist RaDaR

Know About Data Privacy & Security

Data DIY: Data Trusts, Governance, And Collection Platforms Global Genes (link)

Chapter 7: Principles of Registry Ethics, Data Ownership, and Privacy in Registries for Evaluating Patient Outcomes: A User’s Guide, [internet]. 4th Edition Agency for Healthcare Research Quality (AHRQ) (link)